Essentially,
"Kids' Vision" is a story. It is designed intentionally to
communicate far-future, constructive ideals, rather than
current or near-future realities. The
designed vision purposefully uses language that is positive
and affirming to clearly construct an idea of what can be,
rather than leaving room for interpretation by vaguely
saying what shouldn't be. Further, the designed vision uses
progressive concepts that reframe existing structures in
society, such as schools, hospitals, the medical profession
and services, simply because some of the ideals expressed
could not exist in the context of these current paradigms.
The purpose of taking this approach to creating a vision for
services for disabled children and families is three-fold.
First, it allows us to remove ourselves from the current
climate of service delivery and consider not where we want
to go next, but where we want to end up. Like a journey in a
car, knowing the final destination helps plan the route,
rather than aimlessly turning corners hoping one gets to
where one wants to go (and maybe ending up where one doesn't
want to be). Secondly,
employing an element of idealism offers insight into some
philosophical premises upon which a future ideal must be
based. Like a grand house built on unstable foundations, any
seemingly well-designed structure built on unsound
philosophy will be, at best, illusory and, at worst,
dangerous. The designed vision questions, and offers
alternatives to, some fundamental beliefs not only about
disability but also about human nature and society in
general. As such it asks the reader to suspend judgement and
consider that some of the beliefs and values we hold as
humans are not absolute truths but simply truth as we know
it. Finally,
the designed vision plants a seed in the minds of all who
read it and, in doing so, begins a process of creation. In
the course of reading and thinking about the designed vision
- and people reading the draft said that they had to read it
several times in order to absorb some of the new concepts
and ideals - we hope people will discuss and debate the
concepts. We further trust that, following thought and
discussion, people will act in some way that reflects their
new thoughts and words, in turn provoking even more new
thoughts, words and actions. While
the designed vision is not real in the context of the
present, it can be real in our minds. And as we move forward
with that new version of reality in our thoughts, we can
begin to make it part of our future words and
actions. OVERARCHING
PRINCIPLES: The
designed vision contains overarching principles that reframe
many socially constructed beliefs about disabled people.
Over time, humanity has changed its perceptions of women,
indigenous people and ethnic minorities, in turn improving
social conditions for these groups. Similarly, humanity can
change its core beliefs about the experience of impairment
and disability in order to truly effect social change for
disabled people and families. The
principles are: -
There is a continuum between disability and
non-disability -
Pride in being disabled -
Disability is a social construct -
Disabled people have something to offer -
Families experience disability culture and the disabled
lifestyle -
Disability support needs to be designed -
Emotional support exists in an accepting
community -
Practical support exists in an accepting
community - A
constructively inclusive lifestyle is ideal -
Disabled children need to dream freely home
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Principles
of Kids' Vision-
Disability can be a positive experience